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Has autism touched your life?

Some other time, some other place, and things would be different, maybe.
You might even know my name. You might even love me.
But if you'd let me share your world, I promise I could make things right.
So won't you let me share your world?
Won't you let me in? 

I wrote those lyrics in 1998. Back then, my 3-yr-old twin daughters lived in their own separate little worlds. Nobody else was allowed in.

Before I had children I didn't know much about autism. I'd seen Dustin Hoffman in Rain Man, but that was about the extent of my 'knowledge' on the subject. Of course, that all changed when the girls were diagnosed in '97. Senior Management and I soon discovered the diagnosis covers a wide range of symptoms. Mr. Hoffman's portrayal was by no means a blueprint of what we could expect.

Over the years we've come across a lot of people whose lives were touched by autism in some way. Some have children who managed to graduate from college despite being considered autistic. Others are still coming to terms with a recent diagnosis, resetting their hopes and expectations while grieving for the life and future their child will never have.   

Our girls are sixteen now. Sad to say, there'll be no college education for them. No marriage or children. Years ago we accepted (and started to prepare for) the fact that they'll never lead anything like a 'normal' life. In fact, it's the main reason we moved to America.
Even so, my daughters have changed since I wrote that song. They still don't really know my name, but they know I'm 'Daddy' and while we don't have full citizenship in their worlds, they long-since granted myself, my son and Senior Management a sort of occasional Green Card status. 

In the between times when when they're not pretending we don't exist or driving us to distraction, they laugh a lot, and we get lots of hugs. I know my girls are happy and when all's said and done, isn't that what we want most for our children?

How about you?

Has autism touched your life?


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Apr. 27th, 2011 02:08 pm (UTC)
Has autism not touched everyone's lives, in one or another form? I knew two deaf boys once, sat side-by-side on the bus. One was autistic, would rock back and forth in his seat at times, oblivious to the world around him, the other was vibrant, babbling on about things, curious about the world. No, I understood not a word of what he said, he was still well entrenched in the being educated part of the system, but you knew he would, eventually. There was quite a noticeable difference between the two.

Autism itself runs the gamut. There is mild, and not-so-mild. I'm not saying I understand a lot about it, and if I did, that would be an outright lie: but yes, what we want is for our children to be happy.
Apr. 27th, 2011 02:10 pm (UTC)
what we want is for our children to be happy.
Amen to that :)

Things What I Wrote and Other Stuff

No longer in print but there are still some copies floating around out there

No longer in print but there are still some copies floating around out there



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